kirabug’s idea files

Nighthawk got Firefly - The Complete Series for Christmas, since we hadn’t seen it and everyone talked about how good it was.

Wow. I’m hooked. We’re watching two episodes every Thursday and right now Thursday is my favorite day of the week. And the music! I love violins.

Anyway, it’s worth a look, if you’re even later to the party than I am.

For the second time this month we sustained a significant outage - this time around 22 hours sans website. I am growly and looking into ways to prevent further outages. Any suggestions will be entertained. The post I did make from the emergency blog’s been copied in below, and all else is pretty much stable, I think. And of course, I’m backing up all my stuff just in case.

Outside of that, though, things are good. All my stuff is wrapped. Nighthawk’s finishing his wrapping. Dinner’s in the oven. JessieDog is frolicking with the squirrels in the yard. Life is good.

One last site-based note: there’s an advertising hole on the homepage here and another advertising hole on the archive pages (click the title of the above comic to see ‘em). If you haven’t checked out Project Wonderful yet to see how this works, you need to, but here’s the quick jist: you sign up, you indicate that you want to advertise on my site in that empty hole, and you say how much you want to pay per day maximum. If you indicate you want to pay $0 and you’re the highest bidder, that’s free advertising. (Same goes for any of the already-taken slots). In fact, if you indicate you want to pay $0.10 per day and nobody’s bid on the slot, you still get it for free. Free’s good, right?

Anyway, got to go eat dinner. Glad to be back. Happy holidays!

Today we rediscovered the world of processed food. Saltines, it turns out, are the world’s greatest food when you haven’t been allowed to have anything pre-salted in three weeks. Steak sandwiches and pierogis have also hit the menu. There is no baking taking place in the kitchen tonight. The stew does not have to be inspected six times over. I find myself putting all the Kosher foods away on the first night of Hanukkah. I consider us paid up throught Lent of 2050 on the giving up of food things.

And it’s the weekend, which means that even though I still haven’t done anything to prepare for Christmas, I’ve got a shot at it. For the first time in over 13 years, it’s 10 days before Christmas and my husband has done more shopping than I have. Things Must Be Rectified.

I’m still exhausted, but it’s the exhausted of someone who sees the light of home on the horizon — of things returning to normalcy — of delivery people and pre-roasted chickens and potatoes from a box and eggs that come in shells and bread that comes pre-sliced. In a few more days the dog will be underfoot again and maybe, just maybe, we’ll find time to put the tree up.

I’ve declared myself a firm disbeliever in radiation, though as with anyone in an interfaith relationship I’ve promised to respect Nighthawk’s belief in subatomic particles. I stole a hug yesterday, and will steal another one yet tonight. I can smile again.

Radiation. It’s, well, weird. You can’t see it, smell it, taste it, or sense it in any of the usual ways, but it’s just as real as the things you can see or smell or taste or feel.

Nighthawk received his radiation dose today — the big one, the one that will (in theory) kill any thyroid cells that remain in his body, and in turn kill any cancer that they might carry with them.

There wasn’t much ceremony to the event. The attending physician went over all the don’ts, no kissing/etc. for 7 days, no sleeping in the same bed for 5 days, no being in the same room for the first 24 hours, no significant exposure to public places for the next 7 days, no this, no that, no whatever. There were some positives — the dreaded Low Iodine Diet finally ends Friday and the new thyroid drugs are started. In theory, everything after that slides back toward normal, or the new state of normal that we’ll develop for the purpose.

And me, I’m tired. I’m more tired now, seeing the end of the tunnel than I was a few days ago when this was the event we were all waiting for. I don’t know why, to be honest. Maybe it’s all the restrictions. When you’ve spent all but four nights of your entire married life allowed to be within inches of this person who’s a part of you and suddenly he’s got to be way over there or the invisible heebie-jeebies might get you, it’s hard. It’s hard to not kiss him goodnight.

I’ve put three hundred miles on the car in three days. Three trips to and from the hospital and one trip out to Lancaster to help some friends. I’ve cooked and cleaned and organized until I could fall over and there’s still dozens of things to do. The Christmas cards are in their wrappers in a bag in the other room. The tree’s still in its box. I haven’t bought a single present for anyone. Hell, the blanket I started knitting last winter for a spring baby shower and a summer baby is still left unfinished in the dining room. Tomorrow I go back to work, with what energy I cannot fathom.

Maybe I’ll use the radiation I absorbed today. Sure, I can’t see it, smell it, or touch it, but I can’t do any of those things to hope either, and as corny as this sounds I think that might be the only thing keeping me going. Hope that 2007 will be a healthier year, that we can go without surprises for a little while, that somewhere there’s a place to stop and recharge.

Here’s a script (courtesy of Nighthawk) that can help you drive telemarketers crazy, if you’re so inclined.

Personally, I find it easier to a) get listed on the do-not-call registries, and b) ask any poll-takers who call (as they, charities, and politicians are the only ones who got a free pass from the government) to “take me off the list” (with that exact phrase) and then I don’t hear from them anymore.

But this is pretty funny anyway.

So. Nighthawk is scheduled for a radiation treatment in two weeks, which according to all things thyroid cancer means that now he gets to spend two weeks on a low-iodine diet (LID). (Keeping low levels of iodine in the system now will result in what few thyroid cells he’s got left — the ones we’re trying to kill so they don’t get cancerous — getting really really thirsty for the radioactive iodine he’ll get two weeks fron now. Somewhere, one of my dozen-odd grammar teachers just cringed in pain at that sentence structure, but doesn’t know why.)

Anyway, the low-iodine diet means avoiding food high in iodine, only eating small amounts of food low in iodine, and mostly eating iodine-free foods.

Or summed up differently, no dairy, no seafood, no soy, no egg yolks or foods containing egg yolk, no chocolate, no iodized salt, no bread/bakery products because they’re probably fortified and/or contain iodized salt, no prepackaged food because it might contain iodized salt, or red dye number 3.

He can have six ounces of meat a day, pasta that doesn’t contain any of the stuff in the last paragraph (which means semolina or rice noodles, or yolk-free kosher egg noodles, thank you Manischewitz!), up to 4 servings of bread that we make ourselves following low-iodine guidelines, or other grains like oatmeal and similar grainy things or salt-free Matzos (thanks again Manschewitz!), sugar, jam, jelly, honey, soda, tea, beer, wine, fruit joices, and all the fruits and veggies you want as long as you’re not including rhubarb, marachino cherries, rhubarb, or the aforementioned soybeans.

Now, add to that the fact that with his Cystic Fibrosis and Cystic Fibrosis related Diabetes, he’s supposed to maintain a 3000 calorie per day diet (minimum) to maintain weight, and he needs to do it in such a way that he can keep his sugar under control.

Yeah, we’re screwed.

But so far in the last 36 hours I’ve baked cranberry-applesauce muffins, made LID-safe beer bread, and made tomato sauce entirely from scratch that wasn’t absolutely horrible. I’ve learned that my stonewear loaf pan is not yet seasoned to the point that it’s safe to bake bread without some kind of Pam. I’ve learned that a butter knife is not the optimal tool for prying bread out of a stonewear loaf pan. I’ve learned that sugar will cut the acidity from tomato sauce. Sugar, brown sugar, some honey, and gee-that-still-tastes-acidic-to-me more brown sugar might, in fact, be overkill.

And no, neither of us have any idea how much sugar’s in any of this stuff, so the diabetes, yeah, that’s been fun.

But I’m learning to cook…. that’s good, right?

This year, the Children’s Hospital of Philadelphia finally finally finally got involved in Child’s Play and while I don’t honestly expect anyone to give me anything in exchange for this scrawly comic and whine-fest that I host, with the holidays coming and much stuff going on, the best present you-the-reader could give to me would be to give to them.

Why, you ask?

Well, as has been mentioned before, my husband has Cystic Fibrosis. (As does Lila’s husband Cole in the comic. Coincidence?) Nighthawk’s been treated at CHoP. He’s been hospitalized at CHoP. He’s become healthy again within their halls. And he’s been bored senseless in between.

Hospitals look scary when you first get there, especially where emergency rooms and stuff are involved, but really most of the time they are boring. Sometimes you’re so sick you don’t care. Other times, you’re so healthy that you can get up and wander around and make trouble scaring the nurses by drinking apple juice out of the plastic urinal bottles. In between, you’re too tired to get up (or not allowed because of IVs or tests or whatever), and you’ve already seen everything on TV (or can’t afford to have it on) and you filled up your coloring book and you can’t even hang out with the other kids because you’re contagious or they are or maybe they’re too sick to play. And when it’s over the holidays and your folks are strapped for cash because you’re in the hospital and they have to miss work and they have to pay ridiculous co-pays on the insurance and Philly isn’t anywhere close to where you actually live, and gas isn’t cheap, well, it sucks big time.

So if all you do this winter is buy one book, or one video game, or one movie that’s going to keep a bored and sick kid a little happier, well, you’ve done something that looks little but is actually very big.

(And you don’t have to give to CHoP — you could give to any Child’s Play hospital. Or to any other hospital that’s put a wish list up on Amazon. Or just to your local hospital. You know, whatever works for you.)

As for me, I have some money I’ve saved up for charity that I have to go spend now. Thanks!